Wednesday, March 16, 2005
Today was a ho-hum kind of day to say the least. Tuesday I was full of energy and got so much done. Today I feel so barfy and tired--it's almost made worse but the fact that yesterday was such a good day. But then again, they can't all be great days, right? We started the day off by going to Yale once again for Hunter's Neurology clinic. Sometimes I feel like I live at Yale and whenever we think about moving I worry about what we would do without them. They have done so much for Hunter there. Anyway, we were expecting to take Hunter off his medication this summer and see if by some miracle he had outgrown the seizures. To my relief, they've decided to keep him on the medicine a little bit longer. Apparently his EEG came back with evidence of Benign Childhood Epilepsy and that is enough for the doctor to keep him on medicine awhile longer. BCE (that's not necessarily the correct abbreviation but you all know what it stands for) supposedly strikes boys more often than girls, is somewhat genetic (we're not aware of any on either side of our families), has an onset anywhere between ages 2-6 and 98% of children who have it outgrow it by the time they reach puberty. Go figure. Noah and Denver do have a risk of the same thing but in most cases they don't even treat with medication because the seizures are so few and far between. Unfortunatley for Hunter, his were getting more frequent and he has the double whammy of low and high blood sugar which may or may not trigger more seizures. Anyway, at least we have an answer and we have high hopes that it won't last forever. For once a condition that he CAN outgrow!
Devanie and Sierra came to play for the afternoon and after about 45 minutes of all four kids playing quietly all three of my boys had melt down and things got a little wild after that. They all seem to fight, whine and bully all at the same time. They are either all three wonderful or all three terrible and they never go one at a time. So, Devanie and Sierra ran for dear life and I curled up on the couch and tried to block it all out with cartoons and sleep. It worked and when I awoke Denver was curled in beside me sound asleep and Hunter and Noah were playing together like "a wink and a smile." I dragged myself off the couch and ran to the grocery store for green jello (for Hunter's class tomorrow), made some french toast, cut the boys' hair and tucked them in for bed. And am now hopeful that tomorrow won't be so barfy and sleepy.
posted by Shana # 9:38 AM 
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