Thursday, March 10, 2005
I've been dreading this for so long and putting it off for even longer. Hunter's sleep deprived EEG. They told us last summer that they want to take Hunter off his seizure medicine and that before they do they need another EEG. The last EEG was bad enough but this time they said it had to be "sleep deprived." That means keeping Hunter up until 12:00am and then waking him up again at 3:00am. And, once he's up he can't go back to sleep until the scheduled EEG at 8:15am. Hmmmm. And I wonder why I've been putting it off. Anyway Kathy from Yale called last week and said she needed the work done before our appointment on the 16th. So, I couldn't procrastinate any longer.
Luckily for us, Mark is a night person and I am a morning person. So last night Mark kept Hunter up until midnight and then tucked him in. I got up around 3:00am and tried to wake Hunter up but to no avail. So I tried again at 4:00am with the help of "Roller Coaster Tycoon" and we sat together watching TV and playing RCT until it was time to get dressed and head out. We stopped at MCDonald's on the way for breakfast and gobbled up a bunch of hot cakes before his appointment.
Well, I must say it was a much better experience than I had expected and everything went very smoothly. The technician was really great and a pleasure to talk to. She had a great bedside manner. She told us that Yale has started a new program for families making less than $45,000.00 a year--if they have "Yale eligible children" who want to attend Yale, the school will let them go for FREE! Pretty awesome offer if you ask me. Later I could hear her knitting and when I asked her what she was making she said she was making scarfs. She said she just sits there, EEG after EEG, knitting scarfs. Then she takes them to the Yale green and passes them out to the homeless people there. Totally cool. She was a really neat lady and such an inspiration to me. It was great to be in her company, even if it was under not so great conditions. We won't know about the EEG for another week or so, but thank goodness that's all done with. It must have been our lucky day because we also had a great lab tech at the pediatric office that managed to draw Hunter's blood in one go and without any pain. Hallelujah!
posted by Shana # 10:11 AM 
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