Hunter had his neurology and endocrinology clinics today. I have been dreading this day for weeks now. I’ve always felt like diabetes clinic is “mommy report card” day and I hate it! I’ve been especially worried because his diabetes has been completely out of control for the past couple of months.
Things went much better than I had expected. Neurology clinic was uneventful as usual. They are planning on doing another EEG in 3 months and will consider taking him off the Tegretol in another 6 months or so. They may wait until next summer, while he’s out of school. But, that is promising. We still have to have his Tegretol levels drawn which is an ordeal, since it takes 4 of us to hold him down, but it’s no biggee.
Endocrinology clinic turned out to be a good visit and because we were late arriving (due to a long wait at Neurology) we were the last ones there and got lots of time with the head nurse. Hunter is still on the pump, which isn’t what I expected to happen, since I was determined to go back to shots. But, we’ve all come to the conclusion that the problem isn’t neglect on my part and it isn’t a problem with the pump. We think it is an absorption problem since his blood sugar for the past two days has been perfect and the only thing that changed is where I put his infusion set. His A1C was the same as last time, which totally shocked me and gave me a great deal of relief. So, we are going to try a new infusion set–you just jab it into the skin and off you go–no more complicated contraptions or big needles. Instead of a tube that goes under his skin it has a very tiny needle that sticks in his skin and stays there for 3 days. I’m wearing one right now and other than a tiny pinch every now and then, I don’t even notice it’s there. Hunter hasn’t complained either. And, it is something I can do while he hugs me around the neck–no more kicking me in the face! We also found out that we should be bolusing him BEFORE meals, which will be an adjustment, but should help lower his sugars. And some exciting news. . . next month we will get the glucometer that attatches to and communicates with his pump. So, we’ll check his blood and the reading will be sent straight to the pump. Then all we do is put in his carbs and off he goes. Wonderful! And apparently, there is a new contraption, called the Navigator, that inserts under the skin and monitors blood glucose every minute for three days. It has to be moved around like his infusion site, but means no more finger pokes or low blood sugar episodes. It’s being tested by the FDA right now but is something to look forward to. And then, once they figure out how to make that communicate with the pump–well. . .things will just get easier and easier.
Anyway, it is such a relief to have that over with and renews my committment to make this work, as challenging as it is sometimes. Now if we can just figure out how to deal with his anger issues–we’ll be good to go!
